More paramedics trained to spot epilepsy thanks to Bulford family

Charlie Burns (Burns family)

Published by The Spire FM News Team at 5:54am 13th July 2017. (Updated at 3:36pm 13th July 2017)

More ambulance trusts to use training videos following ten year old Bulford boy's death.

The death of a young boy from Bulford almost six years ago is leading to better training for ambulance crews not just here in Wiltshire but across the country.

Charlie Burns suffered from a little known form of epilepsy.

Paramedics called out his home in October 2011 dismissed his first seizure as a febrile convulsion and failed to take him to hospital.

Unhappy with that decision dad Barrie took him to the GP who suggested he might be suffering from nocturnal epilepsy and referred him to a neurologist, tragically four days before that appointment Charlie had a second fatal seizure and died.

The 10 year old's death was attributed to SUDEP - Sudden Unexpected Death in Epilepsy.

Charlie's parents worked with South Western Ambulance Service to make improvements and in October 2016 the trust released a training video to help paramedics spot the difference between febrile convulsions and seizures.

SWASFT chief executive Ken Wenmann said:

"Following Charlie’s sad death we wanted to take action; wanted to make a real difference and most importantly do something that could support the memory of Charlie, especially to understand what learning we can all take from this sad situation. "

Well Charlie's parents have told Spire FM that video has now been rolled out to SIX other ambulance trusts across the country and the hope is even more will take up the opportunity.

Mum Jan is delighted something positive is coming out of the family's tragedy and says awareness is key.

"Sudden Unexpected Death in Epilepsy is one of the top ten causes of early death. The condition kills more people in the UK than cot deaths and AIDS combined."

CLICK BELOW TO HEAR MORE FROM JAN BURNS:

Jan & Charlie (Jan Burns)

(Pictured Charlie and mum Jan Burns)

Since Charlie's death the Burns family have also been supporting and working closely with SUDEP Action.

The charity is dedicated to raising awareness of epilepsy risks - you can find out more here: sudep.org

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